De-Sequencing Identity Work with Genes

Título:

ISBN:

9789811577284

Edición:

1st ed. 2020.

PRODUCTION_INFO:

Singapore : Springer Nature Singapore : Imprint: Palgrave Macmillan, 2020.

Descripción física:

XVII, 181 p. 7 illus., 6 illus. in color. online resource.

Serie:

Health, Technology and Society,

Contenido:

1. Introduction -- Part I Science and Medicine -- 2. Personalised Medicine: Problems of translation into the human domain -- 3. Contemporary Future Parents: From tentative pregnancy and moral pioneers to educated moral gamblers -- Part II Philosophy of Biology -- 4. Developmental narratives -- 5. Epigenetics, responsiveness and embodiment -- 6. Space and time of developmental narratives -- Part III Societal Contexts -- 7. Data mining in systems medicine and the project of solidarity - the interface of genomics and society revisited -- 8. Experimenting with solidarity in biomedicine: from practice to prin-ciple? -- 9. The moral making of data rich personalised medicine -- Part IV Families -- 10. An ordering of letters: my own personal genome -- 11. Illness in the world of the genome -- 12. How personal is the genome? The shadow of genetic predictions -- Part V Individual Experiences -- 13. Lived genome phenomenology. Exploring the genetics of chronic inflammatory bowel diseases -- 14. Existential storytelling in a genomic world.

Síntesis:

Are you your genes? De-Sequencing: Identity Work with Genes explores this perplexing question, showing how different forms of knowledge must be contextualized to become meaningful. It is generally assumed that the genomic sequence adds up to the identity-forming material life is made of. Yet identity cannot itself adopt the form of a sequence. As the authors in this volume show, the genome must be 'de-sequenced' by human language to render it interpretable and meaningful in a social context. The book unpacks this type of 'sequence-speech' in engaging detail, adopting a personal, social, cultural, and bio-political approach to examine the transformation of human identity and reflexivity in the era of genetic citizenship.

Término de la materia:

Science -- Social aspects.

Social medicine.

Medical anthropology.

Medicine and the humanities.

Genetics.

Science and Technology Studies.

Medical Sociology.

Medical Humanities.

Genetics and Genomics.

Autor añadido:

Mahr, Dana.