Foreword; David Satcher -- Tribute to Allan Crocker; I. Leslie Rubin -- Introduction to the volume; I. Leslie Rubin -- Part I. Systems of Delivery Health Care -- Chapter 1. Introduction to Intellectual and Developmental Disabilities; Dilip R. Patel, Donald Greydanus, Joav Merrick and I. Leslie Rubin -- Chapter 2. Health is More Than Medicine; Donald J. Lollar and Randall A. Phelps -- Chapter 3. Health of Health Care for People with Intellectual and Developmental Disability; Wendy M. Nehring and Brandi Lindsey -- Chapter 4. Family Centered Care -- 4.1. Family Centered Care in a Health Care Setting; Catherine de Haas and Ruth Ryan -- 4.2. Siblings of Children and Adults with Intellectual and Developmental Disability; Monica McCaffrey -- 4.3. Grandparents as Caregivers for Grandchildren with Intellectual and Developmental Disabilities; LaShawnDa Pittman, Janice Nodvin and Maeve Howett -- 4.4. Aging Parents; Nancy S. Jokinen -- 4.5. Rights of Individuals with Disability to Parenthood; Karen McKenzie, Laura Shewan and Suzanne Wilson -- 4.6. Foster Care; Julie Dini -- 4.7. Transitioning Youth to Adult Health Care: A Person-Centered and Culturally Competent Approach; Stacey Ramirez, Staeshe Collins and Brenda Liz Muñoz -- Chapter 5. Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities across the Lifespan; Georgina Peacock and Cheryl Rhodes -- Chapter 6. International Classification of Function; Margaret Kyrkou -- Chapter 7. Systems of Health Care Delivery -- 7.1. Clinical Settings for Health Care Delivery; Stephen B. Sulkes -- 7.2. Reaching the Unserved and Underserved: Medical Care in Rural and Urban Settings; Daniel Crimmins and Akilah Heggs -- 7.3. International Perspectives on the Delivery of Health Care; David O´Hara -- 7.4. Health Care Financing; David Ervin -- 7.5. Systems of Health Care Delivery: Community Setting; Rosemary M. Caron -- 7.6. Models for Care for Children with Medical Complexity; Melinda Morin, Justin Alvey, Nancy Murphy and Laurie Glader -- 7.7. School Settings; Jeffrey Okamoto -- 7.8. Health Care Transition; David Wood, Linda R. Edwards and Brian Hennen -- 7.9. Community Healthcare; David A. Ervin and Brian Hennen -- 7.10. Nursing Home Settings; Nursing Home Settings; Sandra Friedman -- 7.11. Current and Emerging Trends for Residential Supports for Persons with Intellectual and Developmental Disabilities and the Impact of Managed Care Initiatives; James Conroy, Steven J. Dale and Robert McCaffrey -- 7.12. Large Residential Facilities; Norberto Alvarez -- 7.13. Community Nursing; Joan Earle Hahn and Laura E. Fox. 7.14. Medical Home; Liz Grier -- Chapter 8. Principles of Care and Ethics; Peter J. Smith -- Chapter 9. Practicalities of Care. 9.1. Practicalities of Care for Adults with Ïntellectual and Developmental Disabilities; Peter Lindsay and Matt Hoghton.' 9.2. Electronic Medical Records; Stephen B. Sulkes -- Chapter 10. Intellectual Disability and the Environment -- 10.1. The Environment; J. Carolyn Graff and Jeffrey A. Foran -- 10.2. Fetal Environment and Risks for Intellectual and Developmental Disabilities; I. Leslie Rubin -- Chapter 11. Built Environments for Improving Human Development and Promoting Health and Quality of Life; Chris Kochtitzsky and Michele Crachiola -- Chapter 12. Public Health Perspectives on Intellectual and Developmental Disabilities; Gloria L. Krahn and Michael H. Fox -- Chapter 13. International Perspectives -- 13.11. Systems of Delivery of Health Care for Persons with Developmental Disabilities: The Case of Belgium; Koen Hermans and Anja Declerq -- 13.2. Service for People with Intellectual Disability in the United Kingdom; Hardeep Uppal and Vee P. Prasher -- 13.3. People with Developmental Disabilities in the United States of America; Gloria L. Krahn and Lynda B. Bersani -- Chapter 13.4. Former Soviet Union; Naira Avetisyan -- 13.5. Health and Social Services for People with Intellectual and Developmental Disabilities in Taiwan; Kuo yu Wang -- 13.6. Intellectual Disability in India: Recent Trends in Care and Services; Satish C. Girimaji and John VS Kommu -- 13.7. Hong Kong, PRC; Ben MF Law and Daniel TL Shek -- 13.8. Israel; Joav Merrick and Mohammed Morad -- 13.9. Canada; Ian Casson, Theresa Broda, Jessica Jones, Alvin Loh, Bruce McCreary, Ullanda Niel and C. Ruth Wilson -- 13.10. Organization of Services and Life-Long Health Care: Japan; Shigeru Suemitsu and Susumu Uehara -- 13.11. Special-Needs Education, Special Care, and Education for Physicians in Finland; Markus Kaski -- 13.12. South America. A Service Example from Lima, Peru; Liliana Mayo and Judith M. LeBlanc -- 13.13. Status of Legislation and Services in Turkey across the Lifespan; Kerim M. Munir -- 13.14. Service Organization and Support for People with Intellectual and Developmental Disabilities in the Netherlands; Frans VPM Ewals and Sylvia A Huisman -- 13.15. International Perspectives: Chile; Rosario Moore, Patricia M Valenzuela, Maria A Paul and Macarena Lizama -- 13.16. Services for Persons with Intellectual and DEvelopmental Disabilities in Italy; Fabrizio Fea -- 13.17. Denmark. A Historic Journey; Joav Merrick, Peter Uldall and Jakob Volther -- 13.18. Service and Care in Australia; Robert W. Davis -- 13.19. Africa; I Leslie Rubin -- Part II. Clinical Care -- Chapter 14. Developmental and Functional Evaluation and Assessment; Dilip R. Patel and Cora M. Taylor -- Chapter 15. Communication with Patients, Parents and Other Caregivers; Sheridan Forster -- Chapter 16. Inborn Errors of Metabolism -- 16.1. Newborn Screening; Geoffrey R. DeTolve -- 16.2. The Mucopolysaccharoidoses; Robert Conway -- 16.3. The Sphingolipidoses; Robert Conway -- 16.4. Mitochondrial Disorders; Frances D. Kendall -- Chapter 17. Genetics and Genetic Syndromes.' 17.1. What is New in Genetics and Genomics?; Helga V. Toriello -- 17.2. Autism and Genetics; Helga V. Toriello -- 17.3. 22q11.2 Deletion Syndrome: A Paradigmatic Copy-Number-Variant (CNV) Disorder; Joseph F. Cubells -- 17.4. Genetic Counseling; Sarah L. Klemm and Jennifer Fulbright -- Chapter 18. Syndromes -- 18.1. Down Syndrome; Brian G. Skotko and Ariel Tenenbaum -- 18.2. Fragile X. Syndrome; Emma Hare, Reymundo Lozano, Lindsey Partington and Randi J. Hagerman -- 18.3. Rett Syndrome: Seeing the Way Forward; Alan K. Percy -- 18.4. Prader Willi Syndrome; Randell Alexander -- 18.5. Williams Syndrome; Elaine Pereira, Robert Marion and Barbara R. Pober -- 18.6. Angelman Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.7. Smith-Magenis Syndrome; Donald E. Greydanus and Joav Merrick -- 18.8. Noonan Syndrome; Jacqueline A. Noonan -- 18.9. Phakomatoses; Bruce Korf -- 18.10. Spina Bifida; Robert A. Jacobs, Alexis Deavonport, Kathryn Smith and Alex Van Speybroeck -- 18.11. Fetal Alcohol Syndrome; Ariel Tenenbaum, Isaiah Wexler and Joav Merrick -- 18.12. Other Syndromes -- 18.12.1. Lowe Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.12.2. Nager Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.12.3. Sturge-Weber Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.12.4. Klinefelter Syndrome; Vandana Raman -- 18.12.5. Cornelia de Lange Syndrome; Elizabeth Poplawski -- Chapter 19. Prematurity and Ist Consequences; I. Leslie Rubin -- Chapter 20. Cerebral Palsy; Sarah Winter -- Chapter 21. Neurological Disorder -- 21.1. Congenital Anomalies of the Brain; Ayelet Halevy, Osnot Konen and Aviva Mimouni-Bloch -- 21.2. Epilepsy; Norberto Alvarez -- 21.3. Sleep disorders; Norberto Alvarez -- 21.4. Movement Disorders; Paula D. Ravin -- 21.5. Dementia and Alzheimer's Disease; Norberto Alvarez -- 21.6. Peripheral Nerve Disorders; Norberto Alvarez -- Chapter 22. Physiatry and Function -- 22.1. Pediatric Aspects of Physiatry and Function; Joshua Vova and Maurice G. Sholas -- 22.2. Psychiatry and Function: Common Issues in Adults with Intellectual and Developmental Disabilities; Dale C. Strasser, Laura Jones and Mitchel Leavitt -- Chapter 23. Developmental Therapies and Functional Assistance -- 23.1. Allied Health Professionals; Meir Lotan -- 23.2. Occupational Therapy; Sharon A. Cermak and Ann E. Borreson -- 23.3. Physical Therapy; Priscilla S. Osborne and Meir Lotan -- 23.4. Speech Language Pathology: Supports to Communication; John M. Costello and Howard C. Shane -- Chapter 24. Health Promotion; James H. Rimmer and Kelly Hsieh -- Chapter 25. Orthopaedic Considerations; Karen M.

Bovid and Dilip R. Patel -- Chapter 26. Dermatology; Brian P. Pollack, Leslie P. Lawley, Jenna Streicher, Jason Hadley and Jack L. Arbiser -- Chapter 27. Eye and Vision Care; Laura Gwatkin -- Chapter 28. Dentistry; Ilan Feldberg and Joav Merrick -- Chapter 29. Otolaryngology -- 29.1 Hearing Impairment; Peter Chung, Shibani Kanungo and Dilip R. Patel -- 29.2 Otolaryngology; Michael McWay and Colleen Dodich -- Chapter 30. Gastrointestinal Issues; Orhan Atay -- Chapter 31. Nutrition; Dawna Torres Mughal and Patricia Novak -- Chapter 32. Feeding Aspects; Laura Minando and Elana M Bern -- Chapter 33. Endocrine Issues; Rachel-Marie A. Cazeau and Manmohan K. Kamboj -- Chapter 34. Urological Concerns; Julian Wan -- Chapter 35. Cardiology -- 35.1 Congenital Heart Disease and Down Syndrome; Kenneth J. Dooley -- 35.2 Congenital Heart Disease; Shiva Sharma -- Chapter 36. Pulmonology, Sleep Disordered Breathing and Sleep Apnea; Charles A. McCaslin and John Norman Schuen -- Chapter 37. Women's Health; Stephanie J. Stockburger and Hatim A. Omar -- Chapter 38. Men's Health; Joav Merrick and Mohammed Morad -- Chapter 39. Sexuality; Sorah Stein and Mitch Tepper -- Chapter 40. Cancer and Oncology; Walid Kaddan and Joav Merrick -- Chapter 41. Severe and Profound Intellectual Disability -- 41.1 Care; Margaret Kyrkou -- 41.2 Psychological Well-Being of Children and Adults with Severe and Profound Intellectual and Developmental Disabilities; Fleur-Michelle M Coiffait and Alexandra T Leedham -- Chap.